When you donate to Joseph’s Goal, take part in a fundraiser or support one of our events, it is reasonable to want to know what happens to that money.
For over 14 years, Joseph’s Goal has helped fund research into Non-Ketotic Hyperglycinemia (NKH), supporting work in the UK and internationally.
Today, around £95,000 is being held specifically to support ongoing NKH research and future research projects.
So why is that money sitting in a bank account rather than being transferred immediately?
Research funding doesn’t follow a neat timetable
Scientific research does not work to the same schedule as fundraising.
Researchers need funding at different stages of a project. There may be periods when substantial sums are required for laboratory work, equipment, staff, testing or the next phase of a study. This is then followed by periods when less funding is needed.
Rather than transferring money simply because it has been raised, Joseph’s Goal keeps funds available until they are needed for the research they are intended to support.
The money is currently held in a high-interest account. This allows it to earn interest while it waits to be called upon for current work and future projects.
Why do we hold research funds?
Keeping money available in this way means Joseph’s Goal can respond when researchers need funding. Rather than having to begin a new fundraising campaign every time a project reaches its next stage.
It also enables us to take a longer-term view.
Research into an ultra-rare condition such as NKH takes years of sustained work. Some projects develop quickly. Others require further testing, additional funding or collaboration with other researchers and organisations before they can move forward.
Having funds set aside gives Joseph’s Goal the ability to continue supporting that progress.
More than £1.3 million raised for NKH research
Since Joseph’s Goal was founded in 2012, our supporters have helped raise £1.3 million for NKH research.
That funding has supported the work of Professor Nick Greene and his team at University College London, alongside research led by Professor Johan Van Hove and his team at the University of Colorado.
The research continues, and so does our commitment to funding it.
Over the coming months, we will be sharing much more about the projects Joseph’s Goal has helped fund. Also the progress researchers have made and the next stages of the work.
We are also developing a new Research Hub and a detailed report. We’re looking back at 14 years of NKH research funding and impact. This will help supporters and families see more clearly what has been funded and what that support has made possible.
A message from our Treasurer and Chairman
As Treasurer and Chairman of Joseph’s Goal, Alan Houghton oversees the charity’s finances and is clear about how money raised by supporters is used:
“All proceeds raised by others are used to support NKH research. The charity’s running costs and expenses are covered by Joseph’s Goal trustees, friends and supporters.”
Thank you
Every pound has come from somebody choosing to help.
From major fundraising events and corporate supporters to sponsored challenges, Lottery players and individual donations, that support has enabled Joseph’s Goal to keep backing NKH research for more than a decade.
We want the people who support us to understand where that money goes, why some of it is held between research stages and what it is helping researchers achieve.
And we’ll be sharing much more of that story.
Support NKH research
If you would like to help Joseph’s Goal continue funding vital research into Non-Ketotic Hyperglycinemia, you can donate through our JustGiving page.
